As you know, Xander has been on oxygen since he's been home (1/8 a liter). Next week we go to the BPD clinic where they will do a full assessment to see if he can be weaned, or even taken off of it.
If you have met xander, you probably noticed he has a very raspy cry and seems to grunt a lot. My guess is that he has a injured vocal cord or the nurses even say a narrowed air way. The good news is, he doesn't have a paralyzed vocal chord (as this happens often when you are intubated for so long). When this happens there is no sound at all.
Our specific prayer this week is that Xander's lungs would completely heal themselves and grow strong enough so he can come off the oxygen when we go to his appointment (which is feb. 9th). For his sake, of course, but also this would make caring for him that much easier. It's tough having to stay in one room of the house everyday, all day. This is where the oxygen tank is, so we are confined to one area in the house. We do have travel tanks, but the hassle of hooking it up just to walk to a different room, isn't really desired. He also is started to tear the cannula right outta his nose. His arms flare and he grabs a hold of it and yanks it. Not a pleasant feeling, having tape ripped off your face.
I also think, because of his lung issues, he has such a hard time being fed. (braxton, on the other hand, has improved drastically. He is taking 80 cc's in 20 minutes!).
Thank you for praying with me!
I hear Mr. X man himself... stirring awake over there. Until next time..
testing
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