So excited to say that Xander has been eating so much better. Ever since we turned up the oxygen during his feedings, he has been taking 50-70 cc's a feeding. This is such an improvement; he was taking only 20-40 cc's before. We also now use 24 calorie formula to give him a little extra boost. We go back to the pulmonologist next week and they will determine what approach to take next. My guess is more weaning on oxygen, but continued use for feedings.
No other procedures/appointments have been made at this time concerning his stridor (raspy voice) and the echocardiogram. Waiting for approval then we'll go forward with that.
Thanks for your continued prayers...we want to see our little guy off these tubes and breathing with ease.
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